Published: Mon, July 10, 2017
Worldwide | By Sean Reid

United Kingdom official says government has no role in Charlie Gard case

United Kingdom official says government has no role in Charlie Gard case

Speaking near Great Ormond Street Hospital (GOSH) on Sunday afternoon, his mother Connie Yates said: "There's nothing to lose, he deserves a chance".

Charlie has a rare, degenerative genetic condition which affects the cells responsible for energy production and respiration and leaves him unable to move or breathe without a ventilator. "We feel that it should be our right as parents to decide to give him a chance at life".

When Charlie's doctors asked for evidence that the therapy might help, Dr I said: "There is no direct evidence, but there is a theoretical scientific basis for saying it could".

The parents have been backed by Pope Francis and President Donald Trump in their quest to seek treatment.

The parents of terminally ill baby Charlie Gard have called on Great Ormond Street Hospital to allow him to travel to the United States for treatment.

High Court listings show a hearing is due to take place at 2pm on Monday July 10th.

Ms Yates and Charlie's father, Chris Gard, have been in a lengthy legal battle with hospital doctors.

"We believe, in common with Charlie's parents, it is right to explore this evidence", Great Ormond Street Hospital said in a statement Friday.

But GOSH said its doctors believed the treatment would be "futile" and could prolong the boy's suffering.

Great Ormond Street Hospital said in a statement on Friday that while it is seeking the High Court's opinion about experimental treatment for Charlie, there is worry it will be ineffective and ultimately prolong his current condition.

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His defiant mum then announced: 'If he's still fighting, we're still fighting'.

A Vatican-run hospital in Rome then offered to treat Gard.

The couple were speaking after two United States congressmen said they would table legislation to give Charlie and his family U.S. resident status in a bid to allow them to travel there for experimental treatment.

Sky News's Ashish Joshi spoke to a leading American pro-life lawyer who is close to the family, the chief executive of Americans United for Life, Catherine Glenn-Foster, about the new High Court hearing, who said it was "very, very, promising".

Nucleoside therapy is the experimental treatment available to Charlie in the US, but it has yet to be sufficiently tested, according to a BBC News' report.

The children's hospital previously won an order to say his life support should be turned off in a case that went all the way to the European court of human rights.

"Our bill will support Charlie's parents' right to choose what is best for their son, by making Charlie a lawful permanent resident in the order for him to receive treatments that could save his life", the two US lawmakers said in a statement.

The hospital said in June that if did apply for ethical permission to attempt nucleoside therapy on baby Charlie, but by the time that decision was made, the infant's condition had worsened.

But, after a worldwide media storm over the case, global experts presented Charlie's family with new evidence that gave the baby a much higher chance of survival than previously thought.

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